9/12/06
10:30 PM: We haven't posted an update in a while, but all is well. Mom is visiting, so we've been too busy hanging out, doing fun things, and visiting to spend much time on the computer. Sophie is doing just fine. Her cough is all but gone, and she feels well. The dressing change on Friday went pretty badly, but it did get changed. I know it will get better, but I do hope it will work out to get rid of the PICC line after her next treatment on 9/19.
Elisabeth's birthday is on Thursday, and she's very excited about it. It's nice that Mom can be here for that. Randall and I will actually not be here for most of her birthday. Randall won a drawing for a free night at the Washington Duke Inn, so we're redeeming that and going out to dinner in Durham. Mom and the girls have big plans for that night, so she'll have a good time (and we'll celebrate with her that morning and at her small party on Saturday).
We found out today that Sophie's Make-a-Wish trip to Disney World will almost definitely be November 13-19. Of course, Sophie is scheduled for treatment that week, but I'm sure they can move it forward to the week before. Just one more official sign-off, but they say there's no reason to think it won't happen on those dates. It's exciting to have the date set and know it's going to happen. What a wonderful treat that will be!
Comments
I am so excited for all of you about Sophie's Make-a-Wish trip to Disney World. After everything all of you have been through these past several weeks, that should be really great. :)
Posted by: Polly | September 13, 2006 09:50 PM
I am so excited that you were able to arrange a trip to Disney with Make-a-Wish!!! That is so exciting :) Maybe Bill and I can take a little visit down to Disney while you are there. Glad to hear that things are going reasonably well for now. Enjoy your visit at the Washington Duke Inn! There is a conference to be held there next June that I want to attend, so I am curious to hear what the hotel is like.
Posted by: Heidi | September 15, 2006 07:39 AM
Hello! I'm Felicia and I run a banners of hope page for children with cancer and I also make myspace tribute sites for children who are ill (by request of parent) The myspace could be made private or public so everyone could read her story. Then people add and post prayers. I have been set up about 5 pages for children with cancer and each has been amazing and the parents have loved it. I would be honored to make a site in your daughters honor, her story has moved me!! To see the other pages visit
www.myspace.com/keepherstoryalive
and
www.myspace.com/sayaprayerforchristi
those are two and for banners
www.myspace.com/bannersofhope
please e-mail back, I would love to make Sohpie a page and or banner!! GOD BLESS AND IM PRAYING FOR HER!!
Posted by: Felicia | September 16, 2006 09:07 PM