3:45 PM (Randall posting): Today has been pretty uneventful. The home health care nurse came this morning to do Sophie's bloodwork. We also changed the cap on her line and changed her dressing. The skin on the border of the dressing is starting to look irritated (with bumps, like a rash), so we had to reposition the dressing a bit. After that trauma, the girls watched Scooby Doo and afterwards we went to lunch (Arby's--Elisabeth ate all of her own lunch and some of mine!). Then Sophie took a nap while Elisabeth and I went outside. Elisabeth played and I worked in the yard a bit, mostly piddling.
Sophie just got up from her nap. She slept through the phone call from the clinic, which brought good news. Sophie's counts are high enough for her to resume the protocol tomorrow. Tomorrow will be a LONG day, as she will need to be throughly hydrated before the treatment, and they will keep her around and keep her on fluids for some time afterwards to make sure the chemotherapy has not damaged her bladder. We will also resume giving her chemo at home with pills and with syringes directly in her IV. This phase will last approximately 28 days, which seems like nothing, really. The heavy duty stuff is in the first two weeks, so we will worry about the here and now rather than worry about what happens 3-4 weeks from now. As a family, we are really learning to live in the moment. At times it has not been fun or easy, but it is the only way we are going to make it through all of this!
"So do not worry about tomorrow, for tomorrow will bring worries of its own. Today’s trouble is enough for today." (Matthew 6:34)