9:10 PM (Randall posting): Gosh! What a stressful day. The girls are all tucked away in bed (Susan too--although she's reading a proposal for work), and I'm doing research on buying a car on the computer. I'm really, really glad we decided not to go to Durham this evening. That would have been too much on top of everything else. At a minimum, I think we have something of a plan for how we will progress with our car situation, and I hope it doesn't entail moving too quickly, although we need to do something soon. Did I mention that our lives are becoming an awful lot like riding a roller coaster lately? What a ride! I think I might be sick.
Both girls seem to be doing fine. Sophie's dressing change was traumatic (of course) but she seemed to get over it right away and she was her happy-go-lucky self within minutes of us finishing. This new dressing (Opsite 3000) is so much better than the others we have tried. Although Sophie still cries and struggles through the whole process, it is much easier on Susan and me (or whoever is helping at the time) with this new dressing.
We're managing Sophie's diet fairly well, although she certainly has her own opinions about what she wants to eat, and they rarely coincide with what we suggest! All in all, we're finding ways to get complex carbohydrates and proteins into her diet on a regular basis, though, and hopefully that will manage her hypoglycemia well enough.
With all that has been happening in our lives (car trouble, Sophie's hospitalization, etc.) chemotherapy has not been chief among our worries. Maybe there is some grace in that. The scary has become the routine. Talk about perspective. It certainly makes me thankful, so very, very thankful that Sophie has responded as well as she has to the chemotherapy. We have seen so many kids with various types of leukemia who have struggled far, far more than Sophie has thus far. It is just heartbreaking to watch, and it makes us appreciate how well things have gone for Sophie. It is, however, a very somber reminder that we are indeed in a life and death struggle.