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8:30 PM (Susan posting): Sophie was up for "snacks" three times during the night, but she didn't eat as much at any one sitting as she did the night before. I was planning to go into work early this morning, but I was really tired after I took my shower, so I went back to bed for a little while. I was still in before 9:00, so it wasn't too bad, and I worked through lunch (eaten at my desk).

Sophie is even puffier today than she was the day before. Even her temples are swollen. Her shirt is stretched tight over her belly, and she has a double chin. Randall said at dinner that she's starting to look like Violet in Charlie and the Chocolate Factory. Here are two pictures, one from the end of June (before steroids) and one from yesterday.

Randall said she seemed really miserable today. When he asked her if she was uncomfortable, she said yes. When he asked what specifically was uncomfortable, she said "my bed." And she has the most comfortable mattress in the house, so there's not much we can do about that.

One of the side effects of the steroid is night sweats (which she definitely has), so Randall changed her sheets today. She's also having pretty bad gas (frequent and quite pungent). Poor little thing. After dinner tonight, she helped out with the dressing change and only got a little upset when I used the alcohol swabsticks to clean the area where the catheter comes out of her chest. She's been "resting" for about an hour and half since then. I don't know if she's down for the night or will be wide awake before long.


Oh my, that photo is woth a thousand words. I bet she is quite uncomfortable! I hope that when the steroids are done she will be feeling better.

As always, you all are in my thoughts.

I'm so sorry you are all having such a tough time. I wish I could be there to get up with Sophie during the night. And I wish I could help her be more comfortable.

We had a quiet day today -- did three loads of wash and went to get peaches. Mom rode along and we had a Subway picnic at Amherst Milling Co. -- along with the chickens and rabbits. I am reading my first Dean Koontz, and will probably be scared to go to bed.

My love and thoughts are with you all.

Bless her heart! I know she feels uncomfortable. It will all be over with soon. Take care and I will keep praying. Laura

Here is a verse that I just read. "Rejoice in hope, be patient in suffering, persevere in prayer" Romans 12:12. We love you all and know with God's strength you will get through this. Give Elisabeth and Sophie a kiss.