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10:40 PM I wish that I could write that Sophie is starting to get back to normal after coming off the steroids, but that is not the case. Maybe she is a little less irritable. Maybe she is a little less obsessive about food. Maybe she is a little more comfortable spending more than 30 seconds on anything. Maybe, maybe, maybe. In other words, it's hard to tell. I've had more of the same from Sophie today (eating, napping, etc.). Reading books has become a new joy for all of us. I always try and find a book we haven't read in a while or one that I think will be particularly fun. Today I read her a book that had buttons you could push to make sound effects that went along with the words. Sophie thought that was fun.

Sophie was definitely demanding (at times) today, and I was not as patient with her as I normally am. I did discover that when you're in the middle of working and she asks for something to eat, you can hold her off by setting the timer for 15 minutes and letting her know that when the timer goes off, you'll be able to do something for her. She seems to understand that I can't drop everything all the time to get her potato chips (for example).

If we're seeing any small changes or improvements, I hope we continue to see them and more tomorrow.


I'm happy for even small changes! Isn't it great that both girls take such pleasure in reading. It must be hereditary!

Mom continues to eat well and move around more. She has also been in a positive mood. We see both of her doctors on Friday.

Much love to all of you.

im praying for all of you ((hugs))