9:00 PM Well, we are definitely about four days into steroid treatment with Sophie. She woke up in the middle of the night and needed something to eat. She has been pretty unhappy (and hungry) for much of the day today. For the most part, we know that it's the steroids and we make do as best we can (she ate nearly half of a large bag of popcorn at the movies today). The problem is that the medicine she takes in the evening cannot be taken with any food at all, and she can't eat for some time before or afterwards. We had a rough evening. Unfortunately, between the steroid-induced craving and the steroid-induced irrationality, there isn't much you can do other than to repeat why she cannot eat when she insists for the 10,000th time that she's hungry. Tomorrow morning is the last dose of steroids during this month of treatment (she gets five days of steroids every month, so once a month for the next 18 months, we'll be going through this).
Today has been a mostly pleasant day other than the side-effects. The weather was nice and we were all outside at one point this morning. Susan and I tended to the flower bed beside the house and Sophie was on the swings. Elisabeth was riding her bike and playing "drive through" in the driveway. This afternoon we went to see "Chicken Little" here in town (where Sophie gorged on popcorn). It was a good time out and a decent (but not great) movie. A good time was had by all.
Our "cute Sophie" moment happened on the way home from the movies as we drove past Food Lion. Sophie said, "I want to go there." We said, "to Food Lion?" She said, "Yeah, I want to pick up a couple of things." Just like that. Her language skills are so amazing some times.
Here's hoping we have a restful evening and another pleasant day tomorrow!