9:15 PM There has not been too much to post, our lives have been moving along in pretty typical fashion. Susan, Sophie, and I continue to have some lingering head cold issues, but we all seem to be getting better. Sophie has been quite a crab today, and we're not sure if it's health-related (maybe she's coming down with something) or if it's just typical three-year old stuff. Lately she is just really digging in her heels when she has to do something that she does not want to do (go to bed, take her medicine, take a bath, etc.). Pretty much anything we ask her to do, she pitches a huge fit (complete with stomping her feet and everything). So, we're working on that. This morning the biggest fit (one of many today) was over going to school. Sophie just did not want to go. Well, as she got increasingly hysterical over the process of getting ready, we just let her stay in her room and vent for a while. We were not going to let her stay home, and we really did not want to be in the same room with her screaming, so we let her be alone for a while. After a while, she more or less willingly went to school, although she was still pretty upset.
Tonight, the dressing change was quite an ordeal. In fact, gone are the days when she cheerfully takes off the dressing by herself. Nowadays, there is much wailing and gnashing of teeth every Monday night as we have to change Sophie's dressing. She is getting less compliant about taking her medicine as well, complaining about how it tastes and insisting that she does not want to take it. Well, you can imagine how far that goes, no matter how much she protests! I guess as I type this that it is all probably a normal, age-appropriate stage that any healthy three-and-a-half year old would go through, but it sure isn't any fun for any of us.
On another subject, I think we've got the pharmacy all straightened out. I'm still witholding my evaluation of this new pharmacy, but we got last week's issues fixed pretty quickly.
Sophie goes to the clinic next Tuesday for a spinal tap and some chemotherapy. Given how difficult she's been lately, I can only imagine the screaming that will ensue next Tuesday as she goes into the sedation room. If you hear anything next Tuesday morning about 9:00am Eastern time, it might be Sophie at the clinic!