8:30 AM: We had a pretty good night, but Sophie did have a very high fever (103.1) right at bedtime. That's not a good sign. It didn't make her at all uncomfortable, and it came down quickly with tylenol. As always, I took a book and sat outside her room so she could go to sleep, but the nurses kept coming in, or the phone would ring, so she was pretty much awake until I went to sleep at 11:00. Did she sleep in this morning? No! She was up at 6:30. There will be a nap today.
The doctor just came to talk to me, and he said the culture they took on the 15th (Monday night) is still negative, but it hasn't been a full 48 hours yet. He's encouraged that it continues to be negative but is worried by the fevers, expecially as high as it got last night. Because of the fever, they took another culture at 3:00 this morning. He said that if the culture from the 15th comes back positive in the next 8-10 hours, we'll have to remove her central line. If that happens, they'll do a peripheral IV (probably in her hand) until the infection is definitely cleared and then they would put in a new line before we go home. So they would only have to stick her one time--not too bad. On the other hand, if the culture stays negative, we could be going home tomorrow morning. The good news is that her ANC was 1.4 this morning, so she doesn't have to wear a mask and go to the playroom without an appointment (and can play with the other kids).
Patti called this morning to say that Elisabeth is complaining of an upset stomach and was in tears about going back to school. She wasn't sure what I would want her to do. I suggested keeping Elisabeth home a bit longer, possibly giving her Tums or Pepto Bismol, and see how she does. It's hard to tell whether she really is coming down with something, or whether she's upset about Sophie, or whether she is just not ready to say goodbye to Patti yet. Whatever it is, I figure when Sophie's in the hospital, it's okay to bend a few rules.