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8/3/06

8:00 PM: I'm back up at Mom's today. Sophie and I drove up last night after I spent most of the day taking care of a bunch of things at home. I did lots of laundry for mom, ordered and picked up medicine for Sophie, took care of errands in town, and visited Achilles at the vet. I decided to leave him there so that our cat sitter won't have to worry about feeding him special food. I also talked with and visited several people from church while I was home, and that helped me a lot.

I talked to Randall for a long time today. He shared lots of details about what they are doing and how it is affecting him. Given the heat wave we're experiencing here on the east coast, it was weird to hear him talk about Johannesburg having the coldest day on record for the last 8 years, and that it snowed there for the first time in something like 25 years. A little snow sounds pretty godo to me right about now. Tomorrow, he'll spend most of the day at game preserve, and he'll get a chance to rest, physically and emotionally.

I haven't really talked much about how Nannie is doing, because up until a couple of days ago, she was reading these updates, and I didn't want to be too negative about her health situation. But you could probably tell from my descriptions that she is not doing well. The primary issue right now is that she has multiple myeloma that wasn't responding to treatment, so she went on hospice about a month ago. In the last week or so, her blood levels have dropped dramatically, and it has really affected her ability to function. When I first arrived on Friday, she was still able to slowly make her way into the living room from her bedroom and eat meals in her chair. I think it was on Monday that it seemed to wear her out too much to come into the living room, so we put a comfortable chair in her room and she took her meals in that chair. On Tuesday, she really couldn't handle getting from her bed to the chair, so we let her eat meals in bed. The hospice nurse came that day and said she didn't think Nannie had enough strength to use the potty chair next to her bed either, so Mom started putting diapers on her. That was the day I went home, and it was really hard to leave. I'm glad I came back. She's been doing about the same. She is still able to eat, although not much sounds interesting to her. Sometimes she forgets how to take medicine, and other times she does just fine. But for the most part, she's pretty alert (which is pretty amazing, considering that she also has dementia). Mom is sleeping in a recliner in the room with Nannie, just in case she tries to get up. We don't want her to fall. It's probably a matter of days now, so we're just hanging out and spending time together, taking things day by day.

Comments

Oh no, what a rough time it is for you right now. How sad to watch someone that you love decline, especially so much in such a short time. I'm sure it is even harder to deal with given that Randall is so far away. You must miss him so much. My thoughts and prayers are with you and your family.

I saw that the weather in South Africa was bad and I thought of Randall. Glad to hear that he is doing okay there, despite the bad weather, and I'm glad that he is going to get a bit of a break.

Heidi

I've just gotten home..again.. and checked to see how things are going. I'm so sorry to hear your grandmother is failing so rapidly. I'm glad that you are able to spend this time with her and your mom. I know it means a lot just having you there. We are thinking and praying for you all.

Susan,
just to let you know that I am always thinking about and keeping your family in my thoughts and prayers. You are such a strong wonderful family and I draw a lot of inspiration from you. I will continue to keep you in my prayers.
Stephanie

Susan, I am so sorry about your grandmother. I'll put you all on the Mt. View Prayer chain. Know your Colorado 'family' has you all in our thoughts and prayers.
Jean

Susan, I am sorry that Nannie is not responding to treatment. My Uncle John (my Mother's brother) had that. He did go into remission, they harvested his own bone marrow, treated it, and then he had an autostem cell transplant. He responded well to that for about two years. He then developed leukemia. I didn't mention it before because of all that has gone on in your life as well as mine. John did not respond to therapy for the leukemia. They were starting the process for matches for a stem cell donor when his leukemia fulmonated. He died in November - literally in a matter of a week or so. I know it is hard to watch those you love go down hill so rapidly. I am sorry that there isn't much I can physically do to be of help right now. I will continue to lift all of you up in my prayers. How is your mom handling all of this? Will she be alright alone? Give her my loving thoughts too. Hugs and kisses all around. Love, Eileen

Susan,

You and your family are in my thoughts and prayers.

Love,
Barbara