4:00 PM: Sophie is back from the clinic and napping. The clinic called last night to let us know they were starting at 9:00 instead of 7:30, so we left later than normal. That meant we ran into traffic, and it was nearly 2 hours door to door, and she was pretty far down the list for procedures again. They gave her fluids right away, so it was fine to wait. The results of her blood text showed that her ANC (which shows risk of infection) was even higher than last week at 2.2, while her hemoglobin and platelets were low (but not at the point of transfusion yet). She went in for her spinal tap (methotrexate in her spinal fluid), and it turned out that they gave her the asparaginase shots while she was under sedation (which is wonderful, because apparently they're quite painful). They gave her vincristine through her IV shortly after she woke up. Unfortunately, she had a negative reaction to the sedative they gave her (the sedative was Propofol). It was quite similar to the paradoxical reaction she had to benadryl the night she was first diagnosed. She was very agitated and occasionally hysterical, with brief periods of calmness. Any little thing would set her off, and it lasted about 2 hours. It was very upsetting. It eventually wore off, and she was fine on the way home. We'll be sure to mention it next week, and they can explore either using a different type of sedation or adding another medicine to it.
Elisabeth is doing well today. She is able to walk on her bad foot and is planning to go to dance class tonight. We'll hang out, just in case it's too much and she needs to cut out early. We have an appointment to see the orthopedist tomorrow morning for follow-up on her broken finger.