8:00 PM: Sophie's had a good day at home today. No health incidents, which is wonderful. She looks pale, but that's not surprising. Although her hair is definitely thinning around her face, the rest of hair is still so thick, you can't tell she's losing any, especially the way it lays (the thick parts cover up the thin parts). The emergency room staff commented that she certainly doesn't look like a kid with Leukemia, so we should be sure to mention it in Triage so that they prioritize her case properly. She has everyone in the ER wrapped around her little finger--she's such a charmer.
She has now finished the first 28 days of treatment in this second course of chemotherapy (five courses of arying lengths). She'll have a blood test on Monday to see if her counts have recovered enough to repeat the 28-day regimen. If her ANC is at least .75, she'll go back to the clinic on Tuesday, which will involve a spinal tap and cytarabine (this is the one that can cause kidney damage, so she has to be there all day while they pump her full of fluids). Last month, before she took the cytarabine, there was blood in her urine (they suspected a bladder infection, but later determined that she didn't have one), so it took a long time to begin the medicine, and we were there very late. We hope to have better luck this time.