8:30 PM: Sophie is asleep, Susan is picking up Elisabeth from dance class (I expect them any second), and I'm avoiding finishing up my term paper from last semester. The deadline to get it in is Thursday, so I'm slowly working up to panic mode, which will probably get me motivated since nothing else seems to at the moment.
Susan was at work today, so I was at home alone with the Sophster. Today was a pretty good day, although words cannot describe how thankful we are that tonight's dose of dexamethasone will be Sophie's last for this phase of chemotherapy. Sophie is so physically uncomfortable and without joy or vitality that it has become really, really hard to be around her.
She is still our Sophie, but she has become something/somebody different entirely. Her weight gain has so radically changed her appearance that it's almost like it's not the same girl. The elastic on the nightgown that she wore to bed last night was cutting into her arms today, so I put her in a dress. A size 5. She has trouble getting around (maneuvers up the back steps like a very little old lady--if she makes it up the steps at all). She rarely smiles, and when she does, it almost looks like it causes her pain to do so. She has little to no interest in just about anything, and whatever interests her does not hold her interest for long (books, TV, I would add toys but she hasn't played with anything for days).
The sole consolation through this phase of treatment has been that it was temporary and one-time-only. I am really thankful that we did not understand or appreciate how difficult this round would be, because it would have been hard to start it.
But tomorrow is a new day, and it will be a day without steroids. Sophie will continue taking an anti-fungal and Nexium (for reflux caused by the steroid) for another two mornings. Thursday morning, she takes no medicine at all. I'm hoping that over the course of this week, her appetite will return to normal, she will lose some of the weight she has gained, she will start sleeping through the night, she will not fly off the handle over the tiniest little things, she will smile and laugh and giggle and play, she will be able (and will want) to dance and run, in short, I look forward to having my little girl back. I imagine she will be glad to be back as well!