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8:50 PM We're all home. We celebrated being here and getting to eat dinner together as a family at our own dining room table! The girls are on their way to bed (I think), and we are gearing up for a return to some kind of routine at home. As we pulled up from the hospital, the pharmacy delivery person was waiting in the driveway with Sophie's medicine. Around 5pm, a nurse from Home Health Care came to show us how to use the antibiotic infusion thing. Sophie will need this treatment 3 times a day, every 8 hours. We're hoping to get on a schedule where we can administer it at 6:30am, 2:30pm, and 10:30pm. That way, we do not have to wake up in the middle of the night to plug it in (and wait for 30-40 minutes for the infusion to finish). It feels as if we're all strung out mentally and emotionally. None of us is patient right now, and we're all quick to get frustrated. It's difficult trying to be a parent and dissuade the girls from being rude or bossy or demanding or just downright challenging. I'm hoping that we will all be able to hang in there and hold together over these next few days.

Sophie's treatment finishes up sooner than we expected--this Friday is the final day. We're going to be anxious to hear how her immune system does, but in the meantime, we're staying at home as much as possible. Maybe that's all for the better, as we'll all get some "down time" to settle back into our "normal" lives.


glad to hear sophie is out of the hospital and doing better god bless her and is there any news on maddi's sister last i read she was going into surgery and thanks for keeping everyone updated on sophie especially all of us who check in from out of the area it makes me feel like im still connected

Happy to hear that you are all home ... I hope that patience returns. Transitions can be quite hard, especially after so little sleep. I hope that you all got a good night of sleep last night! Much easier to sleep at home than in the hospital with nurses that turn all the lights on in the middle of the night!